TeNDER - Co-creation of the intelligent support system with patients, carers and professionals

Authors
D. Krivec
G. Hernández-Peñaloza
Š. Glišović Krivec
D. Fabjan
P. Gangas
C. M. Lozano Hernández
N. Vretos
P. Daras
B. Schäpers
S. Hinterholzer
M. Steinböck
F. Müller
K. Jahn
F. Álvarez García
J. Jimenez Ramos
L. Carrasco Marin
A. Cimini
M. Ricci
Year
2020
Venue
in Alzheimer Europe Conference, October 20-22, 2020.

Abstract

The Project TeNDER (affecTive basEd iNtegrateD carE for betteR Quality of Life) is developing an ICT based integrated care support system for patients with Dementia, Parkinson's disease or cardiovascular diseases, their carers, social care and healthcare professionals. The project involves 13 partners: universities, health care organizations, patients' associations, policy makers, industry and SMEs from 7 European countries, sharing the common aim to improve the quality of life of patients, carers and their care professionals. TeNDER takes into consideration existing services in Slovenia, Germany, Italy and Spain, where 5 large scale pilots are planned. The system is being co-created with end users, who are sharing their needs and wishes regarding the developed supporting technologies and services. Different "Personas", use cases and scenarios were designed with persons with different health conditions, together with people that surround them and taking into account the needs of care professionals. Use cases and scenarios are in the process of testing and validating.   During pilots, users will be involved in the process of iterative testing and validation of technologies (sensors, cameras that capture movement, affective recognition technology and basic health records) and higher-level services (active monitoring, warning and reporting, communication brokerage, virtual assistance and patient empowerment via data visualisation and personalised recommendations). Throughout TeNDER pilots usability and acceptance, together with the Quality of Life of users will be assessed and information about the services developed will be collected with surveys and interviews. With this approach, TeNDER creates the opportunity for patients, careers and professionals, to provide contribution through co-design process. Created services will alongside also foster opportunities for facilitating communication between social and health care professionals, and extending the autonomy of patients that would live more independently.